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Listen in as Allison Breininger and Justin Bajema, millennial caregivers for their chronically ill spouses, speak honestly about what life is like when there are more days spent in sickness than in health.

Sep 15, 2020

Allison and Justin talk about how caregivers need community care in order to practice self care, how they each practice acts of micro-care throughout the day, and what supporters can do and say instead of, “Are you taking care of yourself?”


Sep 1, 2020

Allison and Justin talk about the challenges and stresses of working full time jobs while caring for their spouses. They discuss what their employers have done to support them, how they advocate for themselves at work, and just how hard it is to balance it all.


Aug 11, 2020

Justin and Allison talk about the pressure of being the person who sees the complete picture of their spouse’s health and feeling overwhelmed because they can’t just rely on the doctors, but need to be their own medical researchers.


Jul 28, 2020

Justin and Allison describe all that goes into making appointments happen, from logistics to advocacy to the hangover in the days that follow and how, in the medical setting, they’re never able to “just” be a spouse.

Links:

Q&A with Maya


Q&A with Maya

Jul 27, 2020

After we discussed how to talk to kids about chronic illness in episode 3, Allison sits down with her daughter to get her thoughts on growing up as the child of someone who is chronically ill.