When we become caregivers, any illusion we had of being in control in our lives can be lost. We are often unable to control disease progression, our loved one’s pain, and broken systems, just to name a few. This lack of control can make some people cling more tightly to what they have left and can make others let go altogether. In this episode, Justin and Allison talk about how they have experienced this lack of control and how supporters can help.
Treatment side effects, exhaustion, and role changes are just a few of the many reasons that a couple may struggle with or shy away from physical intimacy when dealing with a recovery from a serious illness. In this episode, Allison speaks with marriage and family therapist from Memorial Sloan Kettering, Dr. Talia Zaider, about how common this is and what couples can do when it does.
Medical appointments are often a huge component of a caregiver’s life, the impact spanning far beyond the time spent with the provider. In this episode, Justin and Allison discuss all that goes into preparing for, living through, and recovering from appointments from a caregiver perspective.
Susan Silk created "The Ring Theory" as a way to guide people who are supporting someone in a crisis. In this episode, Allison and Justin discuss how this model of "Comfort In, Dump Out" applies to caregiving.
As caregivers, we have a front row seat to the suffering of our loved ones. We are often the only people who see them in their hardest moments. In this episode, Justin and Allison talk about what that’s like, the impact it has on them, and how supporters can help.
Allison and Justin talk about how caregivers need community care in order to practice self care, how they each practice acts of micro-care throughout the day, and what supporters can do and say instead of, “Are you taking care of yourself?”