Oncologist Dr. Arjun Gupta’s team has coined the term “time toxicity,”which refers to the significant time investment required for cancer patients and their caregivers to undergo cancer treatment and related activities. In this episode, he talks with Allison and Justin about how he came to be invested in the needs of caregivers and what his team has learned and hopes to accomplish with their research on time toxicity. Note: while Dr. Gupta’s research focuses on cancer patients and caregivers, his learnings transfer to many if not all types of caregivers.
Some caregivers feel there is an unspoken expectation that we only share the positive aspects of our role; that we appear to be brave and strong and grateful. In this episode, Allison and Justin talk about where that misperception may stem from, the damage it can cause, and how supporters can help.
All of the tasks of being a caregiver can take a toll, causing physical, emotional, and mental fatigue. In an unfortunate bit of irony, that fatigue can make the role even more challenging. In this episode, Allison and Justin talk about how it feels to be in an intense season of caregiving, the toll it takes, and the guilt they experience when they feel they aren’t at their best.
Most caregivers come into the role without any medical background and yet find themselves performing high stakes tasks and making countless decisions. In this episode, Justin and Allison talk about times they did receive training, if it was effective, and where the gaps are in the system.
When we become caregivers, any illusion we had of being in control in our lives can be lost. We are often unable to control disease progression, our loved one’s pain, and broken systems, just to name a few. This lack of control can make some people cling more tightly to what they have left and can make others let go altogether. In this episode, Justin and Allison talk about how they have experienced this lack of control and how supporters can help.
Caregivers, like any of us, can fall into the trap of comparing themselves to others. Whether it’s comparing the severity, length, or type of caregiving they are doing with someone else, comparing their own struggles with that of the person for whom they are caring, or comparing their lives to their non-caregiving peers, these thoughts can creep in and keep caregivers from sharing their stories and getting support. Listen in as Allison and Justin talk about the variety of ways comparison can show up and how supporters can help.
Each of us is wired differently and that wiring can lead us to choose our careers, our partners, our hobbies. But caregiving is a role into which we are thrust, so how do our personality traits help or hinder our caregiving lives? In this episode, Allison and Justin interview certified Enneagram Coach Jenna Law to learn more.
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https://www.enneagraminstitute.com/
https://www.everydayenneagram.me/
When someone in our life has an acute injury or medical situation, it makes sense for us to focus solely on their needs. But when an illness becomes longer-lasting or chronic, caregivers need to find ways to balance the needs of their loved ones with their own. In this episode, Allison and Justin talk about why that can be challenging, ways that can look, and what might happen if we don’t.
Aisha Adkins, who cares for both her parents, joins Allison and Justin to talk about her caregiving journey, as well as her work with Caring Across Generations supporting other caregivers.
Caregivers often say that they aren’t seen. But what would it look like to be seen? What is it that they wish for? In this episode, Allison and Justin talk about times and ways that they have felt either unseen or seen in their caregiving roles and the implications of each. In addition, they provide a number of simple strategies that supporters can use to show intentional care for the caregivers in their lives.