All of the tasks of being a caregiver can take a toll, causing physical, emotional, and mental fatigue. In an unfortunate bit of irony, that fatigue can make the role even more challenging. In this episode, Allison and Justin talk about how it feels to be in an intense season of caregiving, the toll it takes, and the guilt they experience when they feel they aren’t at their best.
Justin’s wife received unexpected test results that led down the path of scans, an appointment with an oncologist and a plan for surgery. In this episode, Justin shares what they’ve been through and what lies ahead.
Caregivers can experience frequent moments of disappointment, from plans that need to be canceled to treatments that don’t work to people not showing up when we need them most. In this episode, Allison and Justin talk about the types of disappointment they have faced, ways disappointment can be processed, and what we can do to manage our expectations.
Caregivers and their families frequently find that well-meaning friends, family, and medical staff show up in ways that do not line up with the needs, wishes, and values of the patient. In these cases, it’s important for the caregiver to establish and enforce boundaries, both for their loved one and for themself, which can be challenging on a number of levels. In this episode, Justin and Allison talk about how they feel about setting boundaries, different scenarios in which it may be important to do so, and ways that supporters can help.
Caregiving can have an enormous impact on the mental and emotional health of a caregiver and therapy is one important tool that can help. However, there are barriers that may cause caregivers to hesitate, despite the benefits. In this episode, Allison and Justin share their own experiences with therapy, describe what may stand in the way of a caregiver accessing therapy, and list some resources that can help.
Allison and Justin talk about how caregivers need community care in order to practice self care, how they each practice acts of micro-care throughout the day, and what supporters can do and say instead of, “Are you taking care of yourself?”