Allison and Justin talk about how friends and family have shown up to support them throughout their caregiving journey. They offer advice to supporters for ways to provide support and give some suggestions to those caregivers who are lacking support.
Allison and Justin talk about how caregivers need community care in order to practice self care, how they each practice acts of micro-care throughout the day, and what supporters can do and say instead of, “Are you taking care of yourself?”
Allison and Justin talk about the challenges and stresses of working full time jobs while caring for their spouses. They discuss what their employers have done to support them, how they advocate for themselves at work, and just how hard it is to balance it all.
Justin and Allison talk about the pressure of being the person who sees the complete picture of their spouse’s health and feeling overwhelmed because they can’t just rely on the doctors, but need to be their own medical researchers.
Justin and Allison describe all that goes into making appointments happen, from logistics to advocacy to the hangover in the days that follow and how, in the medical setting, they’re never able to “just” be a spouse.
Allison and Justin talk about how caregivers need community care in order to practice self care, how they each practice acts of micro-care throughout the day, and what supporters can do and say instead of, “Are you taking care of yourself?”