There’s no question that the life of a caregiver is hard and that feelings of disappointment, comparison, and unfairness can be pervasive. So how do caregivers move through their days as they deal with the weight of it all? In this episode, Justin and Allison talk about how to keep going even when everything is terrible.
When someone in our life has an acute injury or medical situation, it makes sense for us to focus solely on their needs. But when an illness becomes longer-lasting or chronic, caregivers need to find ways to balance the needs of their loved ones with their own. In this episode, Allison and Justin talk about why that can be challenging, ways that can look, and what might happen if we don’t.
Caregivers often say that they aren’t seen. But what would it look like to be seen? What is it that they wish for? In this episode, Allison and Justin talk about times and ways that they have felt either unseen or seen in their caregiving roles and the implications of each. In addition, they provide a number of simple strategies that supporters can use to show intentional care for the caregivers in their lives.
Justin and Allison both have good news in their caregiving lives to share, but that news came at a cost. In this episode, they talk about how it's often after the event or the test results are in that the caregiver has a chance to process all they've just been through, but it's at that same moment that the world wants to celebrate and then move on.
Everyone experiences feelings of resentment, but caregivers have extra reasons these emotions might creep up. In addition, they have the layer of feeling as if they shouldn't feel this way and that they definitely shouldn't talk about it. Listen in as Justin and Allison discuss how resentment shows up in their lives, what it might be telling them, how they handle it when it does, and how supporters can help.
Comments made to caregivers can range from insensitive and hurtful to validating and supportive. In this episode, Allison and Justin highlight quotes shared by listeners while talking about how powerful words, or the lack thereof, can be.
It’s a cultural norm to reply that we’re “fine” when asked how we’re doing, even if that isn’t always an accurate answer. Caregivers find themselves hiding behind the “I’m fine!” mask even more often than others. In this episode, Justin and Allison discuss the reasons why, how caregivers can begin to say how they really are, and what supporters can do to help.
Even as they do so much for their loved ones, a common feeling experienced by caregivers is guilt. In this episode, Justin and Allison talk about feeling as if they are never doing enough, about how comparison can be dangerous, and the role that guilt plays in their caregiving lives.
Caregiving is a lonely role. From moments of being physically alone to situations where no one understands their reality, Allison and Justin talk together about the loneliness of being a caregiver.
Allison and Justin talk about how toxic positivity is used by and towards caregivers, and can lead to feelings of being dismissed and unheard. They share ideas of how to share and hear hard things without always going to the bright side.