When you are part of a rare disease or chronic illness community, there is comfort in building relationships with others whose lives look like your own, those who understand the terminology and the reality of your daily life. However, those important friendships can lead to unhelpful comparisons or even heartache as friends are lost to the disease. Listen in as Allison and Justin describe the ups and downs they’ve experienced in friendships with fellow caregivers and with those living with chronic and serious illnesses.
Allison and Justin talk about how friends and family have shown up to support them throughout their caregiving journey. They offer advice to supporters for ways to provide support and give some suggestions to those caregivers who are lacking support.