Even as they do so much for their loved ones, a common feeling experienced by caregivers is guilt. In this episode, Justin and Allison talk about feeling as if they are never doing enough, about how comparison can be dangerous, and the role that guilt plays in their caregiving lives.
Caregiving is a lonely role. From moments of being physically alone to situations where no one understands their reality, Allison and Justin talk together about the loneliness of being a caregiver.
Allison and Justin talk about how toxic positivity is used by and towards caregivers, and can lead to feelings of being dismissed and unheard. They share ideas of how to share and hear hard things without always going to the bright side.
Justin and Allison talk about the pressure of being the person who sees the complete picture of their spouse’s health and feeling overwhelmed because they can’t just rely on the doctors, but need to be their own medical researchers.